- About PEG ("feeding") Tubes
Great overview on how they're placed, what they are, different methods, and personal experiences living with them.
in Public bookmarks with disability end-of-life_care feeding_tubes first-person health info medical
Note: Scroll past the "possible problems" list to get to the article.
- Accepting Autism
Great essay by a mother about how & why she came to accept her young son's newly-diagnosed autism rather than trying frantically to "cure" it, and valuable advice to other struggling parents of autistic kids.
in Health & Disability with acceptance advocacy articles autism autistics children diagnosis disability parent-ally
- Interview with Mom of Autistic: "It's A Great Blessing, To Give Hope."
An interview follows a mother's journey from frantically trying to 'cure' her autistic son to the relief of accepting him after getting "an insider's view" from adults on the spectrum.
in Health & Disability with acceptance accommodation advocacy autism autistics children disability parent-ally parenting
Note: The mom's epiphany:
When asked 'what was the single biggest thing parents could have given you?' unanimously these adults said 'acceptance.' I remember Ralph said: "I've had to wear so many masks in my life because I didn't think anyone would like me for who I was." That's tragic. ... I'd rather [ ...moreeducate] people...than [expect] my son and others like him to be the ones who have to do all the changing.
- No Longer Starving: The Words We Use
Adults/kids that use feeding tubes (and a few parents) on what they'd like people to know about feeding tubes and the folks that have them. Definite must-read for stereotype/stigma bashing!
in Public bookmarks with disability feeding_tubes first-person info medical
- No Longer Starving: Tubie Talk
Information about the different classes of tubes & how they help, using pics of the tube-wearing stigma-bashing author's young friends to illustrate.
in Public bookmarks with children disability feeding_tubes first-person info medical
- Study: Gaze Aversion Helps Pupils Think
Interesting article from the BBC covering research that shows students think better when they aren't making eye contact, something autistics have maintained for a long time.
in Health & Disability with acceptance accommodation advocacy articles autism autistics children disability eye_contact research_studies
- The Vent Life
"Here's rich evidence that life doesn't end after mechanical ventilation from the people who know best -- readers who use vents. They put to rest the vexatious quality-of-life issue, and prove that a vent is just a machine, not an enemy."
in Public bookmarks with disability disabled_people end-of-life_care first-person medical ventilators
- Unanswered Questions
A disabled reporter's commentary on the reality behind assisted suicide requests, examining one in particular.
in Health & Disability with assisted_living assisted_suicide disability disability_rights euthanasia independent_living medicaid__medicare social_services society
- Why Disability Rights Activists Oppose Physician Assisted Suicide
An article by disability rights folk explaining their stance.
in Health & Disability with assisted_suicide disability disability_rights euthanasia info
- 2010 Calendar for SSI & Social Security Payments
Indicates when payments are made, which is very useful for someone wondering whether a certain day qualifies as a holiday (payment then made the previous work day).
in Health & Disability with disability government info ssi__ssdi
- A Ragged Edge Online
Huge site of categorized articles regarding disability & disability rights.
in Health & Disability with disability disability_rights disabled_people info
- Are Some Service Animals More Equal?
Commentary on the dichotomy in what access rights some people feel different kinds of service animals should have, and a proposal to the growing problem of people with some impairments not getting the assistance they need as a result.
in Health & Disability with autism disability pets service
- Autism Women's Network
The mission of the Autism Women's Network is to provide effective supports to autistic females of all ages through a sense of community, advocacy and resources.
in Health & Disability with autism autistics community disability women
- Autistic Art
Wikipedia article covering different kinds of autistic art.
in Health & Disability with autism autistics disability stereotypes wikipedia
- BBC Ouch! Disability Magazine
disability,blogs,BBC
in Health & Disability with bbc blogs disability simpy_bookmarks
- Blue Cats Synaesthesia Resource Center
in Health & Disability with autism directory disability learning_disability sensory_processing synaesthesia
- Butterflies Among Us
disability,lupus,support,multiple sclerosis,fibromyalgia
in Health & Disability with disability fibromyalgia lupus multiple_sclerosis simpy_bookmarks support
- Carolyn's Chiari
"Life with a chronic illness - Chiari malformation - POTS - Occult tethered cord - Ehlers Danlos Syndrome - Cranio-cervical instability - Functional Cranial settling - Retroflexed odontoid - Dealing with chronic pain - Headache without end!"
in Health & Disability with arnold_chiari blogs disability
- Center for Excellence in Augmented Communication
in Health & Disability with accommodation augmented_communication autism disability disability_rights tech
- Chiari Malformation I : Recent Advances in Diagnosis &Treatment
"Our Mission: Help individuals who may have CM1; Help doctors learn more about the most recent advances in diagnosis; Provide official, respectable documentation of previously diagnosed and treated cases."
in Health & Disability with arnold_chiari disability health info medical news
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