- Chip's Chiari Page
Excellent site about Arnold Chiari Malformation 1, with a huge number of personal stories about what people experienced leading up to diagnosis & what helped them improve.
in Health & Disability with arnold_chiari disability info medical
- Conquer Chiari
"Dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research."
in Health & Disability with arnold_chiari disability health info medical by 2 users
- Defining Autistic Lives - a reaction to "Autism Is A World"
An autistic explains her objections to the autobiographical film "Autism Is A World" while watching it.
in Health & Disability with advocacy autism autistics disability disability_rights
- Disability News | PatriciaEBauer.com
disability,blogs,simpy
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- Dr. Laurent Mottron's Lab, University of Montreal
Primarily in French, but includes links to some articles in English. Unbiased research into how autistic brains develop & work including identifying their strengths, rather than approaching all differences as deficiencies.
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- Frank Klein's "Autistic Advocacy"
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- From 'Passing' to 'Coming Out'
A woman born with internal birth defects writes of what it has been like to "pass" as non-disabled and why she's no longer trying to do so.
in Health & Disability with congenital disability disability_rights women
- How can we reach autistic youth taught to hate themselves?
Since their minds don't stop being autistic even if they learn to hide it, a whole generation has come to hate everything about themselves. How can older self-accepting autistics show them they're worth anything?
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- International Coalition on Abuse & Disability blog
disability,abuse,blogs,news
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- Interview
Amanda Baggs on Access to Quality Healthcare in an Autistic World
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- Jim Sinclair's Web Site
Archived version of autistic intersex activist Jim Sinclair's old website.
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- Large Study Reveals Wide Range Of Chiari Symptoms
Interesting page on a study published in 2004 about the wide range of problems ACM can cause, as well as their prevalence.
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- Liberals and Disability Rights: Why Don't They "Get It"?
"What happened to the liberal clergy that supported the civil rights movement in the 60s?"
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- Life, Liberty, and Good Coffee
"I have a brain fart that the medical community calls Chiari Malformation. After decompression surgery in 2006, my brain is learning to coexist peacefully with my spinal cord in the cramped quarters of my spinal canal. With a real hole in my head, I am now free to continue the pursuit of life, liberty, and good coffee -- between headaches, nausea, dizziness, and seizures, of course!"
in Health & Disability with arnold_chiari blogs disability
- Managed Health Care in 2050: An Enhanced Death Benefit
Humorous yet disturbing short fiction piece on what one aspect of managed health care may look like by 2050...
in Health & Disability with disability humor
- Meet The Thalidomiders
Autobiographical pages of people born with thalidomide-associated anomalies around the globe.
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- Models Of Disability
disability,society,info
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- New York Times: Autistics Plead Against 'Curing' Them
Interesting article from the NYT from a few years back, covering the autistic acceptance movement.
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- NHS Choices
Living Well With Autism
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- No Science Behind Singer's Agenda
Letter by a research analyst outlining Peter Singer's views regarding killing disabled people.
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