• About PEG ("feeding") Tubes
  Great overview on how they're placed, what they are, different methods, and personal experiences living with them.
  in Public bookmarks with disability end-of-life_care feeding_tubes first-person health info medical
  Note: Scroll past the "possible problems" list to get to the article.
• No Longer Starving: The Words We Use
  Adults/kids that use feeding tubes (and a few parents) on what they'd like people to know about feeding tubes and the folks that have them. Definite must-read for stereotype/stigma bashing!
  in Public bookmarks with disability feeding_tubes first-person info medical
• No Longer Starving: Tubie Talk
  Information about the different classes of tubes & how they help, using pics of the tube-wearing stigma-bashing author's young friends to illustrate.
  in Public bookmarks with children disability feeding_tubes first-person info medical
• The Vent Life
  "Here's rich evidence that life doesn't end after mechanical ventilation from the people who know best -- readers who use vents. They put to rest the vexatious quality-of-life issue, and prove that a vent is just a machine, not an enemy."
  in Public bookmarks with disability disabled_people end-of-life_care first-person medical ventilators

first-person from all users