- The Value of Openness: The PatientsLikeMe Blog » Does It Work? Lithium and ALS
We can and will do better PatientsLikeMe was built to solve this problem and accelerate the transfer of knowledge about what works and what does not. Today, PatientsLikeMe has data on the progression and history of more than 1600 ALS patients - twice the number in the largest ALS trial in history. Even before the trial results were published, 50 patients worldwide who had elected to start taking lithium, in collaboration with their doctors, have been tracking their progression and blood levels on PatientslikeMe. This is more than twice the number of patients participating in the trial itself! We have data on historical forced vital capacity, the ALS Functional Rating scale, and a full symptom battery for most of the patients who have started, as well as for
By anarchyandy in Public bookmarks with als health medicine social_medicine social_networking web_2.0
- Facebook Group - What Happened On Monks Avenue Sept. 19th, 2008 Should NEVER Happen Again!!
What Happened On Monks Avenue Sept. 19th, 2008 Should NEVER Happen Again!!
By anarchyandy in Public bookmarks with accidents causes facebook social_action social_networking
- Diary.com
By hno in Public bookmarks with demo diaries notes social_networking tools
- Socialthing!
Service that makes it easy to see all the things your friends are doing. It's a news feed for every site that you use in one place.
By hno in Public bookmarks with aggregators communities lifestreaming rss rss_feeds social_networking socialthing tools by 8 users
- GodTube.com
A video-driven social network designed for both Christians and non-Christians.
By hno in Public bookmarks with christianity religion social_networking spirituality tools video by 9 users
- Xtimeline
A wiki-like way of recording history.
xtimeline is a free website that lets you create timelines and explore timelines about history, biography and more.
By hno in Public bookmarks with history reference social_networking timeline tools visualization by 6 users
- Picable
By jdrsantos in Public bookmarks with community photo_sharing photography social_networking by 3 users
- Elgg Spaces
create your own network!
By jdrsantos in Public bookmarks with elearning elgg free social_networking by 2 users
- Elgg: the open source social networking platform
Elgg is an open source social platform based around choice, flexibility and openness: a system that firmly places individuals at the centre of their activities.
Your users have the freedom to incorporate all their favorite tools within one environment
By jdrsantos in Public bookmarks with elearning elgg open_source php social_networking by 6 users
- DataPortability
Share and remix data using open standards.
By hno in Public bookmarks with authentication identity openid social_networking standards by 10 users
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